Extracorporeal shock-wave therapy and CPPS

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HCR123
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Re: Extracorporeal shock-wave therapy and CPPS

Post by HCR123 »

My understanding is this treatment is only good for temporary or short treatment relief and not long term like the protocol that's been well documented in the forum.
Age: 43 | Onset Age: 43 | Symptoms: burning in tip of penis/urethra has mostly faded; mild pain in right testicle; main pain comes from anterior levator ani spasm | Helped By: hot baths, healing time days after PT, klonopin .25-.5mg, meditation (trying to learn) |Taking: 100mg zoloft (recent onset of tinnitus), Omega-3s, VSL3 Probiotic, Q-Rol, Zyflamend, Chelated Magnesium 500Mg | Worsened By: anxiety, depression, thinking about it too much | Other comments: sitting and pireneal and most penis pain/burning is gone from PT but just developed pain after ejaculation coming from levator; some pain from sitting too long depends on spasm; listening to Jon Kabat Zinn helps; need to de-stress my life; my PT says I'm at rock bottom and it's a long journey so I try to tell myself to be realistic about how long it will take and that this takes time so I try not to let it affect my social life
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Re: Extracorporeal shock-wave therapy and CPPS

Post by Chriss »

I guess that this type of treatment procedure can be helpful for those who have not physical major problem, and their symptoms are only neuromuscular or inflammation type. And this therapy should be mixed with relaxation, yoga, stretch...this is my understanding... for those who have stricture or any type of scar it may not be useful.
Age: 37 | Onset Age: 30 (May 2010) | Symptoms: Pain, Itching, Burning, Shooting Pain Sometimes, throbbing, in Perineum, Scrotum, Sphincter, Coccyx, Lumbar, Sacral, ED, Reduced Libido, | Helped By:Headache in the Pelvis, Internal PT, External PT, Gluten Diet, Relaxation, Vacation, | Worsened By:Stress/Anxiety/Suspense, Gluten Alcoholic Drink, Tadalafil, Viagra, Sexual Excitement or Arousal, Pelvic Floor Muscles Clenching| Other comments: Nerves Block (Ganglion Impar, Iliohypogastric, Ilioinguinal, Genitofemoral, Pudendal Nerve block with no effect, Quercetin, Pollen Aid, with Limited Effect, My Story is here : http://www.ucpps.men/forum ... =37&t=8634
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Re: Extracorporeal shock-wave therapy and CPPS

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Re: Extracorporeal shock-wave therapy and CPPS

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webslave wrote: Tue Jul 03, 2018 12:13 am ESWT at CUA 2018
https://www.urotoday.com/conference-hig ... ption.html
Did they forget to say how many treatments the patients had???

I have done 4 over about 3 weeks. So far no change.

Takes about 20 minutes and costs $300 in Bangkok if that info is useful to anyone! It's another one of those treatments where I would like to give it a chance, but it's not clear what that means - 10 treatments? 50? 100? The doc seems to think that 6 is enough to know if it will help or not. But I don't have much faith in docs anymore for this particular problem.
Age: 39 | Onset Age: 17 | Symptoms: Constant feeling of needing to urinate felt in the tip of penis. Frequency. Urgency. None of the typical pain associated with CPPS. | Helped By: Valium, Klonopin, and very hot baths, followed by lying down still/doing relaxation. Also made almost symptom free for a few seconds following a bowel movement. | Worsened By: stress, anxiety, skipping meals, lack of sleep, extended sitting, coffee, alcohol. NO other pain or discomfort although after ejaculation symptoms will usually get worse unless I lie still for 20 minutes or so. | Other comments: Symptoms began at the moment of ejaculation, disappeared after a few months and then returned a few months later and have not gone away since.
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Re: Extracorporeal shock-wave therapy and CPPS

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Re: Extracorporeal shock-wave therapy and CPPS

Post by CMT23 »

Thanks. Maybe worth going all out and doing 12 or even 24 sessions. I stopped after 6.
Age: 39 | Onset Age: 17 | Symptoms: Constant feeling of needing to urinate felt in the tip of penis. Frequency. Urgency. None of the typical pain associated with CPPS. | Helped By: Valium, Klonopin, and very hot baths, followed by lying down still/doing relaxation. Also made almost symptom free for a few seconds following a bowel movement. | Worsened By: stress, anxiety, skipping meals, lack of sleep, extended sitting, coffee, alcohol. NO other pain or discomfort although after ejaculation symptoms will usually get worse unless I lie still for 20 minutes or so. | Other comments: Symptoms began at the moment of ejaculation, disappeared after a few months and then returned a few months later and have not gone away since.
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Re: Extracorporeal shock-wave therapy and CPPS

Post by ppp »

Yes, while searching the internet and pubmed (I have not done so in a while) ESWT seems to be the only treatment that that is new and has shown efficacy in respectable studies. I am surprised no one here seem to have benefited from it.
Age: 33| Onset Age: 24 | Symptoms: dull ache in pelvic area, tension, feeling the need to urinate, frequency, dribbling after urination, ED symptoms started 6 moths after the onset wrecking my life since, abdominal tension, tension in my thighs. | Helped By: stretching/massage , benzos | Worsened By: Mainly sex, but also sitting and anxiety| Other comments: I have seen periods of substantially less flare-ups, but now I am at a steady state where it comes back almost always after sex.
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Re: Extracorporeal shock-wave therapy and CPPS

Post by CMT23 »

I thought about going back for more after the initial 6. I suppose if I had unlimited resources I would do it just to see what happens. But with zero improvement after 6, the Urologists left it up to me, telling me he would have expected some improvement if it was the right way to go. I'm back to Dynamic Contraction Technique stretching. Will let you know how I feel in another 6 months :)
Age: 39 | Onset Age: 17 | Symptoms: Constant feeling of needing to urinate felt in the tip of penis. Frequency. Urgency. None of the typical pain associated with CPPS. | Helped By: Valium, Klonopin, and very hot baths, followed by lying down still/doing relaxation. Also made almost symptom free for a few seconds following a bowel movement. | Worsened By: stress, anxiety, skipping meals, lack of sleep, extended sitting, coffee, alcohol. NO other pain or discomfort although after ejaculation symptoms will usually get worse unless I lie still for 20 minutes or so. | Other comments: Symptoms began at the moment of ejaculation, disappeared after a few months and then returned a few months later and have not gone away since.
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Re: Extracorporeal shock-wave therapy and CPPS

Post by webslave »

Another study, this time on low-intensity shockwave therapy (LiST) :
https://pubmed.ncbi.nlm.nih.gov/32989261/
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Re: Extracorporeal shock-wave therapy and CPPS

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Daniel Shoskes MD
www.dshoskes.com
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Re: Extracorporeal shock-wave therapy and CPPS

Post by webslave »

Great minds think alike (I posted it one day before you) 🙂

Makes sense: shockwaves are known to break up trigger points.
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Re: Extracorporeal shock-wave therapy and CPPS

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Re: Extracorporeal shock-wave therapy and CPPS

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Efficacy and safety of extracorporeal shockwave therapy for the treatment of chronic non-bacterial prostatitis: A systematic review and meta-analysis
The present meta-analysis found that compared with the placebo/sham group, ESWT is efficacious and safe in reducing pain and improving the urinary condition, NIH-CPSI score, and QOL in patients with chronic non-bacterial prostatitis.
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Re: Extracorporeal shock-wave therapy and CPPS

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New review study suggesting low intensity shockwave therapy is useful
https://pubmed.ncbi.nlm.nih.gov/33985934/
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