UCPPS - Prostatitis, Interstitial Cystitis Forum

My experience with my current western-Chicago physical therapist has been iffy (three months with zero pain improvement).

Does anyone have a recommendation for a different one who I might consider consulting, at least for an evaluation?

Bernadette Kamin at The Trigger Point Clinic in Park Ridge has had a good report here.
viewtopic.php?p=35836#p35836

Seems to me Rhonda would be the best. She is one of the PT's who started it all. DW thanks her in his book.

Rhonda? Rhonda who?

EDIT: ah, Kotarinos. Yeah... only problem is that her clinic does not accept any insurance. I'd gladly pay absolutely anything to be rid of this, but is she really worth 5 to 10 times more than a PT who accepts insurance?

There must be other, more-reasonable therapists in the Chicago area. The woman Webslave mentioned, Bernadette Kamin, still works in the area, and would be within reach for me. And she accepts Blue Cross PPO, which is my plan.

EDIT 2: I found Karmin's website; it looks like she has her own clinic now: http://www.kaminpt.com/team-bios.php

If after a couple more months with this PT, I still feel like I'm getting nowhere, I'll see if my urologist will refer me to Karmin.

With this treatment, as with many things in life, there is a wide difference between competence and everyone else.

Does the name Sheila Dugan mean anything to anyone?

My urologist has referred her to me. So far, her advice has been "take a crapload of gabapentin." That may or may not be helping; it's hard to tell. I have a follow up on Dec. 2.

Guy - 2 things:

1) I saw Sheila Dugan. She seems fairly competent and is part of the integrated chronic prostatitis / chronic pelvic pain syndrome program at Rush. I worked the entire program but it was not nearly as helpful as PT.

2) Regarding KOTARINOS insurance. True - they don't take insurance, but I paid out of pocket and then submitted my forms to the insurance agency and was reimbursed. The forms are already coded and bascially the only thing you need to do is mail them in.

I've seen Dr. Dugan at Rush and I trust her.

I also do my PT at Kamin Physical Therapy in Park Ridge. I don't see Bernadette, although she did help out on a visit. I see Melissa Kolecke at Kamin PT, and I can say that I trust Melissa over every Dr. I have seen. Melissa as far as I'm concerned has always had my back, and really cares about pelvic pain issues in men and women. Melissa is who referred me to Dr. Dugan actually.