UCPPS - Prostatitis, Interstitial Cystitis Forum

Carl's basic starter's list

• Purchase the book A Headache in the Pelvis and learn it.
  
  
• Find a qualified Physical Therapist (UK: physiotherapist) in pelvic floor dysfunction. Contact Dr. Wise himself or do a search here.
  
  
• Get a supply of Quercetin and try it for 3 months to calm inflammation. It could help you. If you feel improvements, you can take it long term by taking a break — 4 weeks on, 1 week off.
  
  
• Learn the stretches to do daily outlined in A Headache in the Pelvis. Similar stretches in yoga can be helpful.
  
  
• Take a break from normal exercise or vigorous workouts until the pelvic muscles have healed. Slowly bring those work outs back and see how it affects you.
  
  
• Take evening hot baths and relaxation, whatever works for you, to get out of your head and into a deep breathing routine —paradoxical, autogenic— what ever it is, as long as it's deep and meaningful in breath.
  
  
• Ask your doctor about Elavil (amitriptyline) —low dosage, 10mg— to calm nerves and protect mast cells. Note: you can cut it to 5 mg and do it every 48 hours and eventually stop when you are ready
  
  
• Cognitive work to control anxiety is a huge factor in UCPPS.
  
  
• Drop your pelvis everyday all day. To identify the muscles that you need to relax to drop the pelvis, do this (once only): when you pass urine, stop your flow — those are the muscles, and/or the PC muscle, that could be very tight or in dysfunction. Those are the muscles you need to "drop", and over time it will become second nature to do so.
  
  
• Avoid foods that can irritate. You have to experiment here, it takes time and trial and error. Some say an IC diet helps.
  
  
• If you are a member of a gym that has a steam room, after your workout take a steam bath, preferably with eucalyptus, doing squat and pigeon stretches, and paradoxical relaxation! Very wonderful!!!
  
  
• Learn self internal work through a qualified PT.

These are a few things you can do to get started and know that over time and hard work, you can have a great quality of life and lessons learned about your self that go far beyond our condition. It's a life style change for the better and our condition is the warning to change your life now.

I'm not a doctor and these are the tools that have helped me manage my UCPPS and so can you!!

Over time you can again charge hard in life, but in a relaxed way as I always say!!!!

Regards, Carl.