New to CPPS. Weird journey so far.

Male pelvic pain, prostatitis, IC
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Re: New to CPPS. Weird journey so far.

Post by webslave »

Naphazoline is a decongestant.
https://en.wikipedia.org/wiki/Naphazoline

Decongestants are contraindicated in UCPPS. Sudafed, for instance, can cause flares.

From the Tips page
Prostatitis Tip: be careful of decongestants and antihistamines such as Sudafed, Tavist-D, Contact, Afrin etc.
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Cs1992
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It's back after almost 4 years. Ugh

Post by Cs1992 »

Hello Everyone. 53 yrs old male here. Healthy, active, not overweight, not on any meds

I dealt with this evil issue about 4 years ago and the devil that is UCPPS has decided to re-enter my world. The original issue finally subsided after about 4 months of frustration and worry.

About 5 weeks ago I noticed some lower back/tailbone pain with no particular cause. A few days later, painful post ejaculation reared it's ugly head. About a week later the typical symptoms: scrotal pain, urethral pain, perineal pain, burning, heaviness, urgency.

Current symptoms are urethral pain, urgency, perineum pain, general soreness in pelvic region. The pains seem to migrate from one region to another. My urine flow is pretty good and I normally use the restroom once during sleep. I had no major BHP symptoms prior to this.

I am scheduled to talk to my physician next week but doubt he'll provide me any meds as he is well aware of my previous episode and the fact that antibiotics and pain pills did very little. I'll probably get a referral to a urologist.

Why did this flare up? Best guess: Socially, I am dealing with the worries of a new job, a daughter that just left for college and stress about life in general.

I am taking Quercetin, minimized caffeine, and doing a lot of stretches. Can't say I notice much improvement yet.

I'll keep you posted.

I feel for you guys.
Info: Age 53, no other major heath issues.
initially heaviness, feeling of swelling and discomfort in scrotum,
testicular tenderness which since had transformed into perineum pain,
intermittent burning sensation in urethra, intermittent frequency/urgency issues, mild suprapubic cramps.
Scrotal ultrasound, urinalysis came back normal...no signs of infection.
DRE/CT scan indicates enlarged prostate pushing on bladder with mild wall thickening.. PSA: 1.0.
Prescribed levaquin 3 weeks but stopped after 17 days due to side effect.

Sleep is typically disrupted once per night to urinate, but that's been normal for about 10 years.
Cs1992
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Re: New to CPPS. Weird journey so far.

Post by Cs1992 »

Well, I have an appointment at a urologist practice but can't be seen until Nov 7th. Urologists must be busy folks.

My symptoms seem to rotate: burning tip, sore (sides of) scrotum, perineal pain, burning sensation in groin, heavy/swollen feeling, feeling need to urinate, frequency, and nothing seems to help.

I am doing my stretches, caffeine reduction, relaxation exercises and taking quercetin. NSAIDS seem useless.

I am starting to wonder if I have a low grade infection

Admin comment: caffeine must be eliminated, not merely reduced
Info: Age 53, no other major heath issues.
initially heaviness, feeling of swelling and discomfort in scrotum,
testicular tenderness which since had transformed into perineum pain,
intermittent burning sensation in urethra, intermittent frequency/urgency issues, mild suprapubic cramps.
Scrotal ultrasound, urinalysis came back normal...no signs of infection.
DRE/CT scan indicates enlarged prostate pushing on bladder with mild wall thickening.. PSA: 1.0.
Prescribed levaquin 3 weeks but stopped after 17 days due to side effect.

Sleep is typically disrupted once per night to urinate, but that's been normal for about 10 years.
Cs1992
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Re: New to CPPS. Weird journey so far.

Post by Cs1992 »

Hello again.
I contacted my GP about my delay in seeing a urologist and he asked if I wanted to be prescribed Levaquin for 21 days.

I am not sure what to do but without a positive lab result for bacterial prostatitis, I am reluctant. I don't have a fever or other signs of infection but I know that prostatitis acts in some strange ways regarding symptoms.

Admin comment: I would not do it. There is no signs of infection and quinolones can cause permanent damage.
Info: Age 53, no other major heath issues.
initially heaviness, feeling of swelling and discomfort in scrotum,
testicular tenderness which since had transformed into perineum pain,
intermittent burning sensation in urethra, intermittent frequency/urgency issues, mild suprapubic cramps.
Scrotal ultrasound, urinalysis came back normal...no signs of infection.
DRE/CT scan indicates enlarged prostate pushing on bladder with mild wall thickening.. PSA: 1.0.
Prescribed levaquin 3 weeks but stopped after 17 days due to side effect.

Sleep is typically disrupted once per night to urinate, but that's been normal for about 10 years.
Cs1992
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Joined: Fri Nov 20, 2020 9:53 pm

Re: New to CPPS. Weird journey so far.

Post by Cs1992 »

Thanks. That's what I was thinking.

Given that I just haven't had typical infection symptoms like fever, chills, body aches, lethargy etc, I just don't want to risk it with levaquin.

As of now, it's the perineum pain/burning/pins-needles sensation that is the worst.
Info: Age 53, no other major heath issues.
initially heaviness, feeling of swelling and discomfort in scrotum,
testicular tenderness which since had transformed into perineum pain,
intermittent burning sensation in urethra, intermittent frequency/urgency issues, mild suprapubic cramps.
Scrotal ultrasound, urinalysis came back normal...no signs of infection.
DRE/CT scan indicates enlarged prostate pushing on bladder with mild wall thickening.. PSA: 1.0.
Prescribed levaquin 3 weeks but stopped after 17 days due to side effect.

Sleep is typically disrupted once per night to urinate, but that's been normal for about 10 years.
Cs1992
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Re: New to CPPS. Weird journey so far.

Post by Cs1992 »

Hello.
As I prep for my next doctor visit, this crossed my mind:
Since so many cases of UPPS/prostatitis are not bacterial in origin and antibiotics are so often prescribed, I have a question:

What is the best way to determine an actual infection exists? blood workup? DRE? semen culture? other?
Info: Age 53, no other major heath issues.
initially heaviness, feeling of swelling and discomfort in scrotum,
testicular tenderness which since had transformed into perineum pain,
intermittent burning sensation in urethra, intermittent frequency/urgency issues, mild suprapubic cramps.
Scrotal ultrasound, urinalysis came back normal...no signs of infection.
DRE/CT scan indicates enlarged prostate pushing on bladder with mild wall thickening.. PSA: 1.0.
Prescribed levaquin 3 weeks but stopped after 17 days due to side effect.

Sleep is typically disrupted once per night to urinate, but that's been normal for about 10 years.
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Re: New to CPPS. Weird journey so far.

Post by webslave »

Please review https://www.ucpps.men/viewtopic.php?p=20222#p20222

That's what chronic bacterial prostatitis looks like, invariably.

Acute bacterial prostatitis is a medical emergency. You'd be in hospital a long time ago.

Having ultra-sensitive PCR tests is a waste of time, invariably.
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Cs1992
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Re: New to CPPS. Weird journey so far.

Post by Cs1992 »

New realization?

The pain of this condition seems to be with me every moment of the day, rotating from symptom to symptom No matter what I do, I can't seem to shake it. However, the other day at work my boss startled me with some serious news regarding my job performance (which nearly shocked me) and all of a sudden, the pain disappeared. It returned once I regrouped mentally in about 20 minutes.

Is this telling me something?

Admin comment: It sure is. Look into Dr John Sarno's theory that chronic pain is mostly mental (The Mind-Body Connection)
Info: Age 53, no other major heath issues.
initially heaviness, feeling of swelling and discomfort in scrotum,
testicular tenderness which since had transformed into perineum pain,
intermittent burning sensation in urethra, intermittent frequency/urgency issues, mild suprapubic cramps.
Scrotal ultrasound, urinalysis came back normal...no signs of infection.
DRE/CT scan indicates enlarged prostate pushing on bladder with mild wall thickening.. PSA: 1.0.
Prescribed levaquin 3 weeks but stopped after 17 days due to side effect.

Sleep is typically disrupted once per night to urinate, but that's been normal for about 10 years.
Cs1992
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Re: New to CPPS. Weird journey so far.

Post by Cs1992 »

Well. I followed up with my GP and he sent more for a pelvic/abdominal CT scan. The results show:

1. Moderate BPH. The prostate is 6. 2cm wide with hypertrophy in the transition zone causing an effect to the post inferior bladder wall.

2. Bladder has mild distension and mild wall thickening. (Cystitis)

They believe the BPH this is main contributor to cystitis and outlet obstruction.

My. symptoms (bladder irritation /frequency/urgency, perineal pain, scrotal fullness) seem improved compared to a month ago but I can still sense irritation in the pelvic area. Urgency has improved but is still there. I typically get up once a night to urinate but my nerves seem to play a big role in overall frequency. Stress really aggravates this condition.

I follow up with a urologist in early November.

Admin comment: Bladder inflammation means you should follow the IC Diet religiously: https://www.ucpps.men/viewtopic.php?t=8733 . Goodbye caffeine, goodbye coffee, tea, Coca Cola.
Info: Age 53, no other major heath issues.
initially heaviness, feeling of swelling and discomfort in scrotum,
testicular tenderness which since had transformed into perineum pain,
intermittent burning sensation in urethra, intermittent frequency/urgency issues, mild suprapubic cramps.
Scrotal ultrasound, urinalysis came back normal...no signs of infection.
DRE/CT scan indicates enlarged prostate pushing on bladder with mild wall thickening.. PSA: 1.0.
Prescribed levaquin 3 weeks but stopped after 17 days due to side effect.

Sleep is typically disrupted once per night to urinate, but that's been normal for about 10 years.
Cs1992
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Re: New to CPPS. Weird journey so far.

Post by Cs1992 »

Update from urology vist:
The urologist was not too concerned about my CT scan and was convinced I am dealing with CPPS. When I told him that it started with ejaculatory pain and he nearly shouted "you got all the classic symptoms." Since my symptoms have moderately improved, he suggested physical therapy and offered Cialis and Flomax(I am holding off on these). My urgency and frequency & pain and discomfort have calmed but its still not completely back to normal. No issues with flow or hesitancy.

My plan is to continue quercitin, stretching, and avoiding irritating foods. I follow up with the urologist in 4 months.
Info: Age 53, no other major heath issues.
initially heaviness, feeling of swelling and discomfort in scrotum,
testicular tenderness which since had transformed into perineum pain,
intermittent burning sensation in urethra, intermittent frequency/urgency issues, mild suprapubic cramps.
Scrotal ultrasound, urinalysis came back normal...no signs of infection.
DRE/CT scan indicates enlarged prostate pushing on bladder with mild wall thickening.. PSA: 1.0.
Prescribed levaquin 3 weeks but stopped after 17 days due to side effect.

Sleep is typically disrupted once per night to urinate, but that's been normal for about 10 years.
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Re: New to CPPS. Weird journey so far.

Post by LivingRoomFanatic »

Was the doctor suggesting Cialis for pain or for ED? Just curious as I used to take it for pain but not sure if it was effective as I was taking a lot of other stuff at the same time. Curious as to their reasoning in your case for my own situation. Going through my first major flare at the moment.
Age: 41 | Onset Age: 36 | Symptoms: Hyperactive Testicles, Perineal Pain, Hard Flaccid, Twitching Anus, etc etc | Helped By: Physiotherapy, Tadalafil, Duloxetine | Worsened By: Anxiety and Stress | Other comments: All symptoms improved after PT, Tadalafil & Duloxetine (please read risks of medication before trying)
Cs1992
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Re: New to CPPS. Weird journey so far.

Post by Cs1992 »

Doctor prescribed Cialis as a possible means to increase blood flow to the prostate. I haven't taken it yet as I am trying to avoid meds if possible.

As of now. I mostly suffer from mild cramping/burning in the suprapubic area, minor rectal pain and some perineal discomfort. I notice more pain in stressful situations as well. Food and drink does not seem to have an impact. I'm thinking it's either CPPS or my enlarged prostate pushing on my bladder.
Info: Age 53, no other major heath issues.
initially heaviness, feeling of swelling and discomfort in scrotum,
testicular tenderness which since had transformed into perineum pain,
intermittent burning sensation in urethra, intermittent frequency/urgency issues, mild suprapubic cramps.
Scrotal ultrasound, urinalysis came back normal...no signs of infection.
DRE/CT scan indicates enlarged prostate pushing on bladder with mild wall thickening.. PSA: 1.0.
Prescribed levaquin 3 weeks but stopped after 17 days due to side effect.

Sleep is typically disrupted once per night to urinate, but that's been normal for about 10 years.
Cs1992
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Re: New to CPPS. Weird journey so far.

Post by Cs1992 »

CT Scan Question and Pelvic/abdominal pain

One of the things I forgot to mention is that my CT scan indicated 2 small hernias. I suppose the radiologist/urologist did not think they were significant. But, given my current symptoms of abdominal pain (supra parietal and just below navel) when I bend over or move certain ways, I wonder if I need to address this. I do not have any "bulges" and also wonder if most folks have minor, undectable hernias.

Admin comment: DEFINITELY have a bilateral hernia repair. This has proved curative for some men. 🫨
Info: Age 53, no other major heath issues.
initially heaviness, feeling of swelling and discomfort in scrotum,
testicular tenderness which since had transformed into perineum pain,
intermittent burning sensation in urethra, intermittent frequency/urgency issues, mild suprapubic cramps.
Scrotal ultrasound, urinalysis came back normal...no signs of infection.
DRE/CT scan indicates enlarged prostate pushing on bladder with mild wall thickening.. PSA: 1.0.
Prescribed levaquin 3 weeks but stopped after 17 days due to side effect.

Sleep is typically disrupted once per night to urinate, but that's been normal for about 10 years.
Cs1992
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Posts: 25
Joined: Fri Nov 20, 2020 9:53 pm

Re: New to CPPS. Weird journey so far.

Post by Cs1992 »

Thanks for the suggestion.
If it weren't for the annoying pain when bending over and taking deep breaths, I'd say I am doing better than I was a month ago overall. Still worry about the enlarged prostate pushing on my bladder, but I still have good flow, little residual, and normal void volumes. Some bladder/urethral irritation persists but not like before.
My plan is to continue monitoring this until my next checkup. As any hernia I may have is not visible, I don't know what to expect.
Info: Age 53, no other major heath issues.
initially heaviness, feeling of swelling and discomfort in scrotum,
testicular tenderness which since had transformed into perineum pain,
intermittent burning sensation in urethra, intermittent frequency/urgency issues, mild suprapubic cramps.
Scrotal ultrasound, urinalysis came back normal...no signs of infection.
DRE/CT scan indicates enlarged prostate pushing on bladder with mild wall thickening.. PSA: 1.0.
Prescribed levaquin 3 weeks but stopped after 17 days due to side effect.

Sleep is typically disrupted once per night to urinate, but that's been normal for about 10 years.
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