Hello DMcU,
are you living in Ireland? I know there are doctors in Great Britain that prescribe LDN. It should be easier to get an prescription in GB then in Scandinavia where I'm living. Check the LDN sites for knowledge about LDN-doctors in GB. There are also another option. That is that you buy Naltrexone on a online pharmacy.
LDN - Naltrexone
Re: LDN - Naltrexone
Age: 35 | Onset Age: 34 | Symptoms: | Helped By: SWT, trigger point therapy from a qualified naprapath, Tryptizol, squatting, yoga stretching. | Worsened By: Stress, not sleeping enough, sitting all day, hard workout, eating sugar and carbs in general. I'm now about 70% better with a LCHF-diet!
Re: LDN - Naltrexone
Found this post on the LDN boards: http://ldn.proboards.com/index.cgi?boar ... hread=1933
No prescription necessary for the online stuff. Also inexpensive. I'm not going to try it, but am (selfishly?) interested to hear about others' experiences. There's almost no noise about this drug even in chronic prostatitis / chronic pelvic pain syndrome anecdotes.
Still I don't think a drug fix is enough to heal you, which I hope people remember. I'm thinking too of those prostate injections that help some guys for a month or two (reminds me of a cortisone knee, if it isn't this procedure exactly). I even think people rely too much--way too much, scandalously too much--on PT. I've found the real work is mental. You've got to lengthen the muscles, and step one (two, three, four) is to stop squeezing them. Learning to relax consciously, and ultimately unconsciously, is the most effective treatment I know; it's also a common refrain among the success stories. Because most of us are unconsciously tense; we maybe never knew it and still don't quite believe it, some of us, except here's this worsening pain. So investigate LDN is you want, especially if you're in difficult pain, but don't forget what you're trying to do.
No prescription necessary for the online stuff. Also inexpensive. I'm not going to try it, but am (selfishly?) interested to hear about others' experiences. There's almost no noise about this drug even in chronic prostatitis / chronic pelvic pain syndrome anecdotes.
Still I don't think a drug fix is enough to heal you, which I hope people remember. I'm thinking too of those prostate injections that help some guys for a month or two (reminds me of a cortisone knee, if it isn't this procedure exactly). I even think people rely too much--way too much, scandalously too much--on PT. I've found the real work is mental. You've got to lengthen the muscles, and step one (two, three, four) is to stop squeezing them. Learning to relax consciously, and ultimately unconsciously, is the most effective treatment I know; it's also a common refrain among the success stories. Because most of us are unconsciously tense; we maybe never knew it and still don't quite believe it, some of us, except here's this worsening pain. So investigate LDN is you want, especially if you're in difficult pain, but don't forget what you're trying to do.
Age: 24 CPPS: 21
Re: LDN - Naltrexone
Hi,
Haven't heard anything back from blaker00 for a looong time. Atari, how have you been doing recently? What's your dosage?
This is looks like an intriguing experiment but surprisingly few people appear to have tried it on here...
Haven't heard anything back from blaker00 for a looong time. Atari, how have you been doing recently? What's your dosage?
This is looks like an intriguing experiment but surprisingly few people appear to have tried it on here...
Re: LDN - Naltrexone
Hello everyone!
Its been awhile since I posted on this board. I want to rise a big warning for LDN when it comes to CPPS/Prostatitis. My inflammation and fatigue went drastic down when I took LDN. But I got more spastic and got more tension in the muscles. It even got to my head and neck. I didn't really notice this until I received a muscle relaxant called Paraflex from BioPhausia, the active substance is Klorzoxazon. At first I didn't think the drug worked well. And I was taken LDN at the same time. And a couple of weeks ago I was home from work a whole week cause terrible flu and IBS. And I thought I should stop take LDN cause it makes me too awake and alert. I felt almost sometimes speeded and I had hard time to falling asleep. And I really had to sleep well to get rid of the flu. Guess what happened after a couple of days? The LDN had by spasticity holding activity of Paraflex back. By stopping LDN I got more and more relaxed in the muscle. I thought I share this experience with everyone.
So a BIG warning for LDN if you suffer from spasticity!
Its been awhile since I posted on this board. I want to rise a big warning for LDN when it comes to CPPS/Prostatitis. My inflammation and fatigue went drastic down when I took LDN. But I got more spastic and got more tension in the muscles. It even got to my head and neck. I didn't really notice this until I received a muscle relaxant called Paraflex from BioPhausia, the active substance is Klorzoxazon. At first I didn't think the drug worked well. And I was taken LDN at the same time. And a couple of weeks ago I was home from work a whole week cause terrible flu and IBS. And I thought I should stop take LDN cause it makes me too awake and alert. I felt almost sometimes speeded and I had hard time to falling asleep. And I really had to sleep well to get rid of the flu. Guess what happened after a couple of days? The LDN had by spasticity holding activity of Paraflex back. By stopping LDN I got more and more relaxed in the muscle. I thought I share this experience with everyone.
So a BIG warning for LDN if you suffer from spasticity!
Age: 35 | Onset Age: 34 | Symptoms: | Helped By: SWT, trigger point therapy from a qualified naprapath, Tryptizol, squatting, yoga stretching. | Worsened By: Stress, not sleeping enough, sitting all day, hard workout, eating sugar and carbs in general. I'm now about 70% better with a LCHF-diet!
Re: LDN - Naltrexone
Atari,
I also have chronic prostatitis / chronic pelvic pain syndrome and just started researching LDN. I'm good at research, its my job. If it was working for, I would give up on it so easily. Try reducing the dose by 1/2. Increased spasticity may be transient! I'd try it, but quitting tramadol is a bitch, so I will wait and see if it helps others.
See below:
Side Effects & Dosing of Low Dose Naltrexone (LDN)
Many medications result in unintended reactions called side effects. LDN is no exception. Internal chemistry changes, endorphin levels increase, and the immune system is upregulated--a generally beneficial process that can, nevertheless, take time getting used to. Fortunately, the side effects associated with LDN are usually mild and of a transitory nature.
Dr. M.R. Lawrence is an English physician with multiple sclerosis (MS) who treats it with LDN. He also prescribes LDN for his patients. The following are his observations and advice regarding common side effects associated with taking LDN. While they refer primarily to people with MS, they also apply (with the exception of spasticity and possibly pain) in other situations involving the administration of LDN.
When starting this LDN (Low Dose Naltrexone) therapy in the treatment of MS, there may also be some initial transient, though temporary, increase in MS symptoms.
Experience in using this method has demonstrated most commonly, such as disturbed sleep, occasionally with vivid, bizarre and disturbing dreams, tiredness, fatigue, spasm and pain. These increased symptoms would not normally be expected to last more than seven to ten days.
Rarely, other transient symptoms have included more severe pain and spasm, headache, diarrhea or vomiting. These additional symptoms would appear to be associated with the previous frequent use of strong analgesics, which effectively create an addiction and dependency, thus increasing the body's sensitivity to pain.[Similar symptoms can also occur in people unknowingly allergic/sensitive/intolerant to gluten and/or dairy and who take those foodstuffs concurrently with LDN.]
In addition, because LDN stimulates the immune system and many of the drugs routinely used by the NHS in the treatment of MS further suppress the immune system, LDN cannot be used in company with steroids, beta interferon, methotrexate, azathioprine or mitozantrone or any other immune suppressant drug. If there is any doubt, please submit [to your doctor] a full list of the drugs you are presently taking so that their compatibility may be assessed. In addition, because LDN will also block the analgesic effects of any opiate drugs (includes codeine, dihydrocodeine, morphine, pethidine or diamorphine) presently being taken, the use of LDN will initially greatly increase the level of pain experienced. It is therefore advisable [in cases of dependency] that any opiate-like drugs be discontinued at least two weeks before this treatment is initiated [to allow a "drying out" period].
When starting the treatment it is essential that any untoward or adverse side-effects are reported immediately [to your doctor] so that the treatment process can be further assessed and, if necessary, modified.
Italian researchers conducting a four month clinical trial of LDN in the treatment of MS made this statement about side effects:
Transitory haematological abnormalities (increase of liver enzymes, hypercholesterolemia), mild agitation and sleep disturbance were the commonest adverse events.
Because LDN tends to initially worsen MS symptoms (especially spasticity), Dr. Skip Lenz, a pharmacist who takes LDN prophylactically, recommends a nightly dose of 1.5 mg the first month, 3 mg the next month, and 4.5 mg thereafter. For life-threatening conditions such as cancer, the recommended dose is 4.5 mg from the outset. To quote Dr. Lenz:
The reason we suggest a stepwise titration [for MS patients especially] is to AVOID SIDE-EFFECTS. Three years ago, we found that EVERY PATIENT WHO STOPPED TAKING LDN BECAUSE OF SIDE-EFFECTS STARTED AT 3.0 MG OR HIGHER! There was only one patient who started at 1.5 mg who stopped because of side effects. Our efforts here should be to help the greater population. Now, there are some tough guys who can go straight to 4.5 mg and have no problems, but I betcha someone with a headache would feel differently or someone whose legs are screwed up in knots or someone who has had the bejeebers scared out of them with nightmares (me).
I also have chronic prostatitis / chronic pelvic pain syndrome and just started researching LDN. I'm good at research, its my job. If it was working for, I would give up on it so easily. Try reducing the dose by 1/2. Increased spasticity may be transient! I'd try it, but quitting tramadol is a bitch, so I will wait and see if it helps others.
See below:
Side Effects & Dosing of Low Dose Naltrexone (LDN)
Many medications result in unintended reactions called side effects. LDN is no exception. Internal chemistry changes, endorphin levels increase, and the immune system is upregulated--a generally beneficial process that can, nevertheless, take time getting used to. Fortunately, the side effects associated with LDN are usually mild and of a transitory nature.
Dr. M.R. Lawrence is an English physician with multiple sclerosis (MS) who treats it with LDN. He also prescribes LDN for his patients. The following are his observations and advice regarding common side effects associated with taking LDN. While they refer primarily to people with MS, they also apply (with the exception of spasticity and possibly pain) in other situations involving the administration of LDN.
When starting this LDN (Low Dose Naltrexone) therapy in the treatment of MS, there may also be some initial transient, though temporary, increase in MS symptoms.
Experience in using this method has demonstrated most commonly, such as disturbed sleep, occasionally with vivid, bizarre and disturbing dreams, tiredness, fatigue, spasm and pain. These increased symptoms would not normally be expected to last more than seven to ten days.
Rarely, other transient symptoms have included more severe pain and spasm, headache, diarrhea or vomiting. These additional symptoms would appear to be associated with the previous frequent use of strong analgesics, which effectively create an addiction and dependency, thus increasing the body's sensitivity to pain.[Similar symptoms can also occur in people unknowingly allergic/sensitive/intolerant to gluten and/or dairy and who take those foodstuffs concurrently with LDN.]
In addition, because LDN stimulates the immune system and many of the drugs routinely used by the NHS in the treatment of MS further suppress the immune system, LDN cannot be used in company with steroids, beta interferon, methotrexate, azathioprine or mitozantrone or any other immune suppressant drug. If there is any doubt, please submit [to your doctor] a full list of the drugs you are presently taking so that their compatibility may be assessed. In addition, because LDN will also block the analgesic effects of any opiate drugs (includes codeine, dihydrocodeine, morphine, pethidine or diamorphine) presently being taken, the use of LDN will initially greatly increase the level of pain experienced. It is therefore advisable [in cases of dependency] that any opiate-like drugs be discontinued at least two weeks before this treatment is initiated [to allow a "drying out" period].
When starting the treatment it is essential that any untoward or adverse side-effects are reported immediately [to your doctor] so that the treatment process can be further assessed and, if necessary, modified.
Italian researchers conducting a four month clinical trial of LDN in the treatment of MS made this statement about side effects:
Transitory haematological abnormalities (increase of liver enzymes, hypercholesterolemia), mild agitation and sleep disturbance were the commonest adverse events.
Because LDN tends to initially worsen MS symptoms (especially spasticity), Dr. Skip Lenz, a pharmacist who takes LDN prophylactically, recommends a nightly dose of 1.5 mg the first month, 3 mg the next month, and 4.5 mg thereafter. For life-threatening conditions such as cancer, the recommended dose is 4.5 mg from the outset. To quote Dr. Lenz:
The reason we suggest a stepwise titration [for MS patients especially] is to AVOID SIDE-EFFECTS. Three years ago, we found that EVERY PATIENT WHO STOPPED TAKING LDN BECAUSE OF SIDE-EFFECTS STARTED AT 3.0 MG OR HIGHER! There was only one patient who started at 1.5 mg who stopped because of side effects. Our efforts here should be to help the greater population. Now, there are some tough guys who can go straight to 4.5 mg and have no problems, but I betcha someone with a headache would feel differently or someone whose legs are screwed up in knots or someone who has had the bejeebers scared out of them with nightmares (me).
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
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davcastaneda
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Re: LDN - Naltrexone
Dear Blake, I would appreciate if you clarify whether the Bob Beck protocol works because you wrote a post in December 2009 and it said that you had completely cured. Now in 2010 the post of LDN says you still have prostatitis. Please help me, I want to buy the Electrifier blood but expensive and not if it worked. Sorry for the wording, I'm Chilean (use google translator)
Low Dose Naltrexone
Hey Webslave - wondering your thoughts on Low Dose Naltrexone as a part of a shotgun approach.
Age: 32 | Onset Age: 29 | Symptoms: Urethral Pain/Irritation | Helped By: | Worsened By: | Other comments:
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webslave
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Re: LDN - Naltrexone
Atari, the member who reported success with LDN back in 2010, was active here on the forum in August 2018. So I suspect it's yet another thing that helps for a short time. May be worth experimenting!
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Re: LDN - Naltrexone
I think some CPPS patients with inflammatory symptoms has autoimmune inflammation disorder which can exacerbate or improve by diet. I also have mild improvement by taking azathioprine (Imuran), 50mg (morning, night). Also sugar and gluten exacerbate symptoms dramatically. For example for one month I was on just meats, chicken, fish, and green vegetables and I eliminated all the other foods. After 3 to 4 weeks most of the pain and symptoms, inflammation and low libido and ED disappeared. But continuing of this diet was hard for me and I left it.
It seems autoimmune inflammatory reaction is one of the main part of CPPS. It seems LDN also can improve CPPS in autoimmune regulation way.
It seems autoimmune inflammatory reaction is one of the main part of CPPS. It seems LDN also can improve CPPS in autoimmune regulation way.
Age: 37 | Onset Age: 30 (May 2010) | Symptoms: Pain, Itching, Burning, Shooting Pain Sometimes, throbbing, in Perineum, Scrotum, Sphincter, Coccyx, Lumbar, Sacral, ED, Reduced Libido, | Helped By:Headache in the Pelvis, Internal PT, External PT, Gluten Diet, Relaxation, Vacation, | Worsened By:Stress/Anxiety/Suspense, Gluten Alcoholic Drink, Tadalafil, Viagra, Sexual Excitement or Arousal, Pelvic Floor Muscles Clenching| Other comments: Nerves Block (Ganglion Impar, Iliohypogastric, Ilioinguinal, Genitofemoral, Pudendal Nerve block with no effect, Quercetin, Pollen Aid, with Limited Effect, My Story is here : http://www.ucpps.men/forum ... =37&t=8634