I'll give you a TLDR version. Maybe one day I'll make a video about my 2 year and 4 month journey with this bullshit.
TLDR
- I started experienced UCPPS symptoms 2 years and 4 months ago.
- At that point, I simultaneously developed some IBS/SIBO type of symptoms.
- My health was seemingly on a downward spiral since that point in time.
- I at some point experienced a ton of odd symptoms. Numbness and tingling of the finger tips and toes, hand tremor, feeling more clumsy (issues with gait), very anxious (not normal for me whatsoever), inability to keep my eyes completely still without darting around a bit (this is referred to as nystagmus), all the typical UCCPS symptoms including "hard flaccid" and muscle twitching all throughout my entire body.
- I stumbled upon a video about thiamine deficiency based off the work of Dr. Derrick Lonsdale.
- Thiamine (vitamin B1) is an incredibly important vitamin and a deficiency could cause issues with your GI tract, cardiovascular health, nervous system, etc.
- When I learned about the symptoms and what CAUSES thiamine deficiency, it all made sense. There are things that deplete thiamine. Some of these include alcohol, caffeine, vomiting, raw fish and diets high in carbohydrates.
- Dr. Derrick Lonsdale argues that thiamine deficiency is NOT just associated with alcoholics and that there are many people in the general population who are suffering from thiamine deficiency in some manner. Obviously, there are various degrees of "deficiencies".
- I began supplementing with different forms of thiamine at different doses and logging my subjective feeling as well as other metrics every day.
- Within two days of thiamine supplementation, my erectile quality dramatically improved. I went from 80% hard and needing stimulation to maintain my erection to 90% or so within these two days. I'm currently at 100%.
- The form of thiamine matters. I recommend trying thiamine tetrahydrofurfuryl disulfide or benfotiamine. With TTFD, start at 50 mg per day and work your way up. With benfotiamine, start with 200 mg - 300 mg per day and work your way up. Disclaimer: I'm not a doctor. Do your own research.
- You will also want to supplement with a B complex and magnesium. I was taking Thorne's Basic B supplement as well as 600 mg of magnesium bisglycinate (most bioavailable form) at night.
- Recovery will take some time but you should most likely notice some improvements immediately.
Watch these videos if you'd like to go into more depth.
Videos
Admin comment: interesting ... if anyone can replicate this, I'll move it into the Success Stories forum.