I met a Woman at my PT appointment who had to stop drinking Coffee due to her Pelvic Floor Dysfunction - but she says she can drink it again (in moderation) using this product - and not aggravate her symptoms.
Does anyone know about this?
Check it out.
http://hourglasscoffee.com/index.php
Let me know what you guys think.
I understand that this is what some people call "Hobo Coffee".
Thanks...
Joseph
Attention Coffee Drinkers (?Good News?)
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JoVoChicago
- Experienced
- Posts: 118
- Joined: Tue Dec 16, 2008 2:17 am
- Location: Chicago Illinois
Attention Coffee Drinkers (?Good News?)
Age:46 | Onset Age:42 (first occurence Age 17). | Symptoms: A belt of pain that wraps around my waist radiating down my groin & into testicles. Also: Radiating from hips down thighs, Urinary urgency even after voiding, lightning bolts of pain that shoot through my rectum, penis & perineum, muscle spasms in my bottocks, fear of sexual arousal or erection. | Helped By: Hot Water Therapy, RSA Breathing, Pacing more than sitting, Avoiding Negative People, Painting & Writing, Painkillers. | Worsened By: Wearing Pants, Anger, Panic, Depression, Stress, Vigorous Sex, Prolonged Sitting, Constipation, Abrupt Movements, Lifting/Carrying anything more than a Gallon of Milk, Forgetting to do the above things I'm helped by. *Ejaculation is a Mixed bag: It definitely relieves pressure & pain in my Abdomen (as well as a good emotional release) - But, causes bigtime burning in my penis & perineum for 10-45 minutes after.
Re: Attention Coffee Drinkers (?Good News?)
I have a colleague who told me once that she is really into iced coffee over the summer and that it is much better made via cold extraction. So some people might even feel like they get a better cup this way.
Re: Attention Coffee Drinkers (?Good News?)
Over the last 6 months or so I was drinking coffee again...but started noticing a jump in my anxiety and feeling more aggressive...(my wife noticed this as well) with all the layoffs that are happening in my industry and economic hard times...I felt it was time to just give it up...I think I just can't do it...So I'm done with coffee...I have already noticed my mood is more mellow...too bad because I enjoyed the pep...
Best, Carl...
Best, Carl...
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
Re: Attention Coffee Drinkers (?Good News?)
I'm with ya Carl, done with the coffee too. Its not worth aggravating urgency problems. Although I did have a few diet cokes at a bar over the weekend and I noticed my anxiety level jumped a bit.
Since I can't drink alcohol what other drinks can I order at a bar besides water that won't caffeine trigger. I'm running out of options . Does 7 up or sprite have a lot of caffeine?
Since I can't drink alcohol what other drinks can I order at a bar besides water that won't caffeine trigger. I'm running out of options . Does 7 up or sprite have a lot of caffeine?
Age: 43 | Onset Age:43 Feb 2008 95% better since seeing PT | Symptoms: tightness in hips and thighs, perineum pain, groan tightness burning golfball sensation , urinate frequency every 10 minutes | Helped By: eliminating coffee and diet cokes ,meditation, hot jacuzzi, PT visits weekly w/ trigger point internal therapy, extra padding for chair ? | Worsened By: ? sitting in chair at work , stress, anxiety
Re: Attention Coffee Drinkers (?Good News?)
Sprite doesn't bother me...But with saying that, I feel all carbonated drinks should just be out of my diet... 
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
Re: Attention Coffee Drinkers (?Good News?)
Can you not drink a glass of red wine, its rich in quercetin. I have no problems whatsoever from red wine, saying that I've been drinking a small glass of vodka with soda the other day and didn't have any problems with that either. i think as long as you stay away from caffeine and citric acid you should be ok.rellis wrote:Since I can't drink alcohol what other drinks can I order at a bar besides water that won't caffeine trigger. I'm running out of options . Does 7 up or sprite have a lot of caffeine?
Age: 33 | Onset Age: 32 Initial Symptoms: Frequent urination Current Symptoms: The odd feeling of frequency but not much else Helped By: Not thinking about it, hot bath, red wine, light exercise, Bowen technique seems to help, getting on with my life Worsened By: catastrophic thinking, worrying things will get worse, feeling depressed, reading websites too often! Work! Sitting in work all day isn't good!! Current Progress : Since 1st Sept 08, no pain!!! :)
Re: Attention Coffee Drinkers (?Good News?)
Sprite and 7-Up are caffeine-free. But everyone seems to be different in what does or doesn't bother them. I've not tried Gary's red wine or vodka, but I know he has mentioned having issues with beer in other posts, and yet that doesn't seem to cause me any issues.
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JoVoChicago
- Experienced
- Posts: 118
- Joined: Tue Dec 16, 2008 2:17 am
- Location: Chicago Illinois
Re: Attention Coffee Drinkers (?Good News?)
I should mention - I've not had caffeine in 27 years - the last thing I need is more energy... I'm always looking for ways to burn off my energy through exercise - but it's so hard to do any exercise with this Pelvic stuff going on...which is what I attribute to my excessive anxiety returning - I was so used to being very very active - then chronic prostatitis / chronic pelvic pain syndrome came and I could barely move from my bed/couch/chair.
I drink decaf coffee for the taste - this contraption is supposed to reduce the acid content in coffee considerably - which is the possible cause for the Pelvic irritation associated with coffee.
Correct?
Acids = Histamines ?
I've also given up all carbonated beverages - even sparkling water... which I used to enjoy with my meals.
I don't eat or drink anything with sugar or artificial sweetner added to it either.
Nothing with chocolate or cocoa in it.
I'm gluten free for over 7 weeks now.
I've gone completely vegan.
Extra high antioxidant - with a Blueberry/Almond milk drink and I juice Spinach/Carrots/Ginger 2x a day.
Antioxidants are supposed to reduce inflamation in the body - and all animal products and byproducts contain saturated fats which are supposed to raise inflamation in the body.
I'm constantly searching for more ways to remove inflamation in the blood and raise inflamation extracting antioxidants in the blood.
Anyhow - I can live without hot Decaf Coffee - but I really really love Iced Coffee in the Summertime.
So - I'm going to buy the organic low acid decaf coffee beans from Whole Foods and make Coffee using this (acid reducing) Coffee extraction machine - using soy milk as opposed to cows milk or cream.
Does anyone here drink Coffee for the taste? or is it just for the energy?
I'm just wondering.
Also: I've been learning a lot from talking to people in the waiting room of my PT - and it seemed unanimous that the drink of choice in bars and clubs is Vodka w Cranberry Juice - it was the only drink that they said doesn't aggrivate their Pelvic Symptoms.
I'm not a drinker - unless you consider the occasional single bottle of Heavy Weiss Beer (8/12 times per Summer) and the occasional Red Wine with dinner.
I really realy enjoyed a cold beer on a hot Summer day - but - I'm thinking of giving it up this Summer.
I'm pretty much subtracting everything that adds inflamation to my body and focusing on adding things that reduce inflamation.
Inflamation of the blood is thought to be a major contributing factor to all pain in the body.
also: it has been proven that Stress is a major blood inflamation agent.
Anyhow - let me know if anyone has tried this method of Coffee extraction and were able to dodge any symptom aggrivation.
Thanks...
Joseph
I drink decaf coffee for the taste - this contraption is supposed to reduce the acid content in coffee considerably - which is the possible cause for the Pelvic irritation associated with coffee.
Correct?
Acids = Histamines ?
I've also given up all carbonated beverages - even sparkling water... which I used to enjoy with my meals.
I don't eat or drink anything with sugar or artificial sweetner added to it either.
Nothing with chocolate or cocoa in it.
I'm gluten free for over 7 weeks now.
I've gone completely vegan.
Extra high antioxidant - with a Blueberry/Almond milk drink and I juice Spinach/Carrots/Ginger 2x a day.
Antioxidants are supposed to reduce inflamation in the body - and all animal products and byproducts contain saturated fats which are supposed to raise inflamation in the body.
I'm constantly searching for more ways to remove inflamation in the blood and raise inflamation extracting antioxidants in the blood.
Anyhow - I can live without hot Decaf Coffee - but I really really love Iced Coffee in the Summertime.
So - I'm going to buy the organic low acid decaf coffee beans from Whole Foods and make Coffee using this (acid reducing) Coffee extraction machine - using soy milk as opposed to cows milk or cream.
Does anyone here drink Coffee for the taste? or is it just for the energy?
I'm just wondering.
Also: I've been learning a lot from talking to people in the waiting room of my PT - and it seemed unanimous that the drink of choice in bars and clubs is Vodka w Cranberry Juice - it was the only drink that they said doesn't aggrivate their Pelvic Symptoms.
I'm not a drinker - unless you consider the occasional single bottle of Heavy Weiss Beer (8/12 times per Summer) and the occasional Red Wine with dinner.
I really realy enjoyed a cold beer on a hot Summer day - but - I'm thinking of giving it up this Summer.
I'm pretty much subtracting everything that adds inflamation to my body and focusing on adding things that reduce inflamation.
Inflamation of the blood is thought to be a major contributing factor to all pain in the body.
also: it has been proven that Stress is a major blood inflamation agent.
Anyhow - let me know if anyone has tried this method of Coffee extraction and were able to dodge any symptom aggrivation.
Thanks...
Joseph
Age:46 | Onset Age:42 (first occurence Age 17). | Symptoms: A belt of pain that wraps around my waist radiating down my groin & into testicles. Also: Radiating from hips down thighs, Urinary urgency even after voiding, lightning bolts of pain that shoot through my rectum, penis & perineum, muscle spasms in my bottocks, fear of sexual arousal or erection. | Helped By: Hot Water Therapy, RSA Breathing, Pacing more than sitting, Avoiding Negative People, Painting & Writing, Painkillers. | Worsened By: Wearing Pants, Anger, Panic, Depression, Stress, Vigorous Sex, Prolonged Sitting, Constipation, Abrupt Movements, Lifting/Carrying anything more than a Gallon of Milk, Forgetting to do the above things I'm helped by. *Ejaculation is a Mixed bag: It definitely relieves pressure & pain in my Abdomen (as well as a good emotional release) - But, causes bigtime burning in my penis & perineum for 10-45 minutes after.
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robertpagen
- Old Hand
- Posts: 316
- Joined: Thu Mar 18, 2004 4:51 pm
- Location: Beijing, China
7 UP is better than Sprite
Please note that 7 up is one of the last sodas that does not have Sodium Benzoate. Sprite is loaded with it, I have found Sodium benzoate to be an irritant
Age: 43 | Onset Age: 17 | Symptoms: previously: constant urgency, premature ejaculation, burning at tip of penis, pelvic ache current: semi annual flares. | Helped By: PT, yoga, stretch, keeping warm(long johns) boxer briefs, regular sleep routine | Worsened By: cystoscopy, antibiotics (fluoroquinolones) alcohol, coffee, stress, masturbation, cold
Re: Attention Coffee Drinkers (?Good News?)
Home made soda's are also great as you get to control what goes into them (I still have grandad's elderberry lemonade recipe somewhere, pity I can't get them here in Aus).
And tomorrow is C Day. Alas its time to farewell my beverage of dependence, farewell coffee, I knew thee well.
God help my Bangalore staff, I do believe they are going to have a bad day.
And tomorrow is C Day. Alas its time to farewell my beverage of dependence, farewell coffee, I knew thee well.
God help my Bangalore staff, I do believe they are going to have a bad day.
Age:32 | Onset Age:32 after non consensual sex and an agonizing 3 months of waiting and stressing for test results (all clear). Had a uti and numerous tests for STD's. | Symptoms: Lower back pain, groin,glut, ham string and quad muscle pain, burning penile pain, perineum, rectal pain. | Helped By:Yoga, Valium (2mg every couple of days), stretches, hot bathes, meditation, PT internal. | Worsened By: Stressing about this, antibiotics (adverse reaction which has buggered my muscles and nervous system), coffee, sitting at work for too long
Re: Attention Coffee Drinkers (?Good News?)
I couldnt drink coffee, tea or alcohol only water for the last three years..now 6 months after HITP I can drink what I want..the irritation referring to my bladder has settled down...still have pain but not from the bladder..this I can say is like a new freedom to eat what I want..I am a good weight again. Its wonderful as I couldnt eat fruit either.
CPP since 2005. Prior to CPP always overly fit and active. I am female. Had two natural births: singleton 1998 and twins 2000. 2002 emergency back surgery - L5S1 herniation. Then recurring UTIs. Usual antibiotic overload. Then constant debilitating burning bladder and reaction to many foods. Australian Pain Clinic 2007. Turning point was Dec 2009 Attended Wise Clinic in Santa Rosa USA.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
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we.the.hulk
- Intermediate Member
- Posts: 87
- Joined: Fri Feb 19, 2010 12:14 am
Re: Attention Coffee Drinkers (?Good News?)
Hi sherradin
You speak of your bladder pain disappearing after the clinic. I had never experienced bladder pain prior to clinic. Now it seems like I've resolved most of my issues (burning urethra, head of penis pain etc. The typical), but now I'm getting burning bladder. Began to notice it after taking certain supplements etc. That previously had not caused symptoms. Now most days it seems as if I have a low grade burning most of the time. Does this sound familiar to you? Seems like you dealt with the bladder thing for quite awhile. Was it strictly the internal work that freed you from this misery? What do you think was the turning point? Would love to hear your thoughts. Thanks! Hope you are well.
You speak of your bladder pain disappearing after the clinic. I had never experienced bladder pain prior to clinic. Now it seems like I've resolved most of my issues (burning urethra, head of penis pain etc. The typical), but now I'm getting burning bladder. Began to notice it after taking certain supplements etc. That previously had not caused symptoms. Now most days it seems as if I have a low grade burning most of the time. Does this sound familiar to you? Seems like you dealt with the bladder thing for quite awhile. Was it strictly the internal work that freed you from this misery? What do you think was the turning point? Would love to hear your thoughts. Thanks! Hope you are well.
Age: 40 | Onset Age: 40 | Symptoms: burning urethra at first / now just urgency/frequency. tingle at penis tip inside urethra. | Helped By: running / stretching / good nutrition / vitamins /urelle /Xanax | Worsened By: stress/anxiety
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critthinker
- Senior Veteran
- Posts: 242
- Joined: Sat Dec 05, 2009 10:15 am
- Location: California
Re: Attention Coffee Drinkers (?Good News?)
WTH, I had increased pain after taking certain supplements. I think I had an adverse reaction to the bromelain in any accredited quercetin product and in another brand of Quercetin that contained Bromelain in it. I tried regular Quercetin, and did not have this reaction anymore (keep in mind that Quercetin without Bromelain is less effective, but it might be worth trying). Also, I later experienced the burning bladder pain after eating acidic substances, drinking sugary drinks, etc. I hypothesized that this was neurogenic inflammation and tried out Uroxatral (there's a study out there that indicates alpha blockers can help w/ neurogenic inflammation). Within a few days, I was back to eating "normal" foods again.
Age: 27 | Onset Age: 26 | Symptoms: Pelvic pain (began w/ introduction into bladder/prostate of highly resistant strain of bacteria that was acquired via a Botox injection intended to treat levator ani syndrome) | Helped By: Paxil for anxiety, Trigger point release and trigger point injections, stretches, hot baths, Prosta-Q | Worsened By: Stress/anxiety, Sitting down for long periods,