I am having a chicken or the egg moment about my CPP.
Five years ago after a series of UTIs I started reacting to food with bladder irritation. When I look back there were times when I ate normally - when I was on holiday and my symptoms seemed to mysteriously disappear.
But as things got worse the things I could eat became less and less. No alcohol, coffee, sugar, fruit any thing with moderate levels of salicylates in it. I have followed the low salicylate diet now for five years.
I have had a big improvement with the Wise protocol which I started before I attended the clinic in December 2009.
So I am thinking. Did the neuromuscular windup lead to irritated bladder nerves that react to food because they are sensitised. Elavil and Lyrica are the drugs that help.
I can definitely feel two types of pain. The bladder irritation from food and the muscular pain from guarding my pelvis from the irritation to the food.
As you see I am going around in circles. I guess it doesn't matter. As HITP says once the neuronal windup calms you may be able to eat more foods. PS under cystoscopy my bladder looks healthy it is nerves I am feeling they say.
I guess I shouldn't have had a blueberry muffin last night as its doing my head in with such an itchy bladder today. Hydroxyzine helps but seems to give me thrush.
Food intolerance and CPP
Food intolerance and CPP
CPP since 2005. Prior to CPP always overly fit and active. I am female. Had two natural births: singleton 1998 and twins 2000. 2002 emergency back surgery - L5S1 herniation. Then recurring UTIs. Usual antibiotic overload. Then constant debilitating burning bladder and reaction to many foods. Australian Pain Clinic 2007. Turning point was Dec 2009 Attended Wise Clinic in Santa Rosa USA.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
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Re: Food intolerance and CPP
You can actually both grow more nerves in the area (increased nerve growth factor NGF) and also feel more discomfort from what once only gave you mild or no discomfort (allodynia). The trick is to unwind this situation, easier said than done!
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