The reason of my CPPS...or what?

Anxiety, panic, depression, OCD
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User-CPPS
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The reason of my CPPS...or what?

Post by User-CPPS »

I suffer from mental disorders since I was 13!

When I really started to become interested in girls, I felt I had to protect my genitals! With 14 I got chronic prostatitis / chronic pelvic pain syndrome the first time without knowing and I wanted to die because of the pain! The urologist even performed a cystoscopy, and I felt destroyed after this trauma! the same year later I "learned" how to masturbate and then felt the pain after ejaculation! I thought something got destroyed due to the doctors examination (who was the father of a friend, which created more shame). So it took millions of examinations with urologists later to become 26 years old that I found out about chronic prostatitis / chronic pelvic pain syndrome myself with the help of the internet! :62_58_40:

CPPS created OCD for me, or OCD created chronic prostatitis / chronic pelvic pain syndrome for me...I don't know! I was circumcised as a baby without anaesthesia, my first psychotherapist thought that this would have traumatized me since I have the predisposition for this!

This trauma created my fear to protect my genitals in the future! The pain of chronic prostatitis / chronic pelvic pain syndrome forced me to OCD...I needed to protect myself of all germs and things that could harm my genitals, making me disabled to ever have sex with a woman! (It is not strange that I am still a virgin, but 2009 I really stepped forward, since I had a major improvement of my health this year!).

So no one can really say, why this all happened to me! But I need to focus on several things:
  • behave "normal": fixed now...some minor things will stay with me, but they do not keep me from reaching my goals any longer! (thanks to fluoxetine [Prozac])
  • be painfree: hopefully in the future
  • be awake/no CFS: hopefully in the future, Modafinil helps a lot
  • be relaxed and tension-free 24hours: hopefully in the future, now much more relaxed then ever in my life
So, my issues have to be addressed from many professionals...which makes it complicated! And my treatment is very expensive! My insurance does not cover it! Life sucks, but hope never dies!
Age: 41 Onset Age: 14, 22 got really bad
Symptoms: pain and discomfort perineum, a little bit while sitting in the right half of the scrotum. Sometimes dual stream while urinating. While ejaculating, not all shoots outside, some stays and flows outside with time (Without medication very painful).
Diagnosis: have seen several urologists in my life, have done any possible and pain creating diagnosis could not help me ever. Life was hopeful after googling the Stanford/Wise-Anderson Protocol in early 2008, then every ache started making sense./ Hemorrhoids: they stress my prostate when I have a Hemorrhoid flare!
Helped By: Physical therapy, keeping myself warm, hatha yoga, stretching, walking, relaxation, distraction, Tadalafil 5 mg
Worsened By: Constipation, Fear or OCD "flare up", sitting and not doing any kind of "motion", too much tension in media or life, caffeine and acidy food
Prior Treatments: Antibiotics, Tamsulosin, Lyrica, Gabapentin, Tylenol
BSchuman
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Re: The reason of my CPPS...or what?

Post by BSchuman »

Hey, I saw this one and I had to comment.

Keep on trying drugs and exercises. Something should work. I haven't been "cured" but I've found many things that help. Little things...

Masturbate with your irregular hand (ie, if you're a lefty, use your right hand, if a righty, use your left). Those of us who get used to masturbation tend to do it a bit roughly, which is bad for your urinary/pelvic health and can make you unresponsive to a woman (as sex is much softer than a hand). Doing it with your weaker hand will make it a bit softer and will be altogether better for you. Also, do not do it very often. Try to limit it to 3 times a week or less. If you have one of those days where you do it more than once, then try to hold out for about a week afterwards.

I've noticed some minor things that we take for granted that contribute to chronic prostatitis / chronic pelvic pain syndrome symptoms. One is sitting position. Not so long ago, I noticed that I habitually sit with my butt cheeks slightly spread. I tried sitting differently to see if it made a difference and it does. If I put my butt cheeks closer together - not clench them, but just sit on them with them close up against each other - my comfort increases. It's such a subtle thing that I forget sometimes.
Other than that, listen to your body. Diet is huge and paying attention to your diet will pay off.
Age: 25 Onset Age: 23 but some symptoms since 16 Symptoms: delayed/retarded ejaculation, pain in scrotum, pain in penis head, pain in urethra, frequent urination, painful urination, weak urine stream, dribble at end of urination, dribble at end of ejaculation Helped By: relaxation, exercise Worsened By: heavy food (esp. gluten products), alcohol, coffee, stress, frequent masturbation
User-CPPS
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Re: The reason of my CPPS...or what?

Post by User-CPPS »

hello and sorry, I forgot to subscribe my topics and was not informed of answers!

very interesting, I know most of your symptoms, I guess!

Actually I think I masturbate too little and I have to do more! Since Prozac I lost my libido in the beginning, but gained it back later. Still, I lost the urge of masturbating, just have the urge to have sex with "real" women (which I don't get yet, since I don't get women I want ("let's be friends" :62_58_40: )and would get women I really don't find attractive), so I am a virgin that failed any chance to have his first experience. I have done kissing, but nothing that has nudity in it. Just cursed I am, I think, but hope never dies.

Good tip to use the other hand! Got to test it, makes sense!

Diet: yeah, I stopped eating dairy products and red meat (really seldom I would make an exception).
Could not replace bread yet, it is just to convenient to have some bread when there is no time to cook all day, so I am not gluten free, but reduced! Also I eat no sweets, just some fruit or marmelade. Basically calorie and fat reduced is what I am eating!
Age: 41 Onset Age: 14, 22 got really bad
Symptoms: pain and discomfort perineum, a little bit while sitting in the right half of the scrotum. Sometimes dual stream while urinating. While ejaculating, not all shoots outside, some stays and flows outside with time (Without medication very painful).
Diagnosis: have seen several urologists in my life, have done any possible and pain creating diagnosis could not help me ever. Life was hopeful after googling the Stanford/Wise-Anderson Protocol in early 2008, then every ache started making sense./ Hemorrhoids: they stress my prostate when I have a Hemorrhoid flare!
Helped By: Physical therapy, keeping myself warm, hatha yoga, stretching, walking, relaxation, distraction, Tadalafil 5 mg
Worsened By: Constipation, Fear or OCD "flare up", sitting and not doing any kind of "motion", too much tension in media or life, caffeine and acidy food
Prior Treatments: Antibiotics, Tamsulosin, Lyrica, Gabapentin, Tylenol
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Re: The reason of my CPPS...or what?

Post by webslave »

I think your OCD is genetic and underlies your other problems. You have, like so many UCPPS patients, disorders on the anxiety spectrum. It's good that you have found some relief with Prozac, and your tiredness and CFS are probably due to the overuse of the HPA axis. I do sense that you are improving!
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